Welcome to My MG and Me
Follow along as we learn how to adjust and live with Myasthenia Gravis.
An uncommon auto-immune
muscle disorder
Who am I?
Hi, my name is R.J. and I was diagnosed with Myasthenia Gravis at 16. At the time, there were less than 120 people in the world with MG under the age of 18. I was then this generation’s double thymectomy. The first was at 16, and they pulled a T-bone steak sized thymus gland out of my chest. A decade later thymus glad re-grew into a web warping around my lungs and heart. After an unfortunate car accident when someone ran a red light at high speed, 9 months post opp, and slammed into the front of my truck so hard, the impact of my chest against the door, shifted the metal holding my breastplate together. Because that caused nerve damage ghat has presented as server pain since, I was able to participate in an experimental treatment called High does Cytoxan to try to turn my immune system off a back on again. This allowed a 10-year window where I was in a partial remission.
The disease has returned.
After getting Covid more times than I can remember, the MG has returned in ful. However, this time, I'm older and it has presented differently. Follow as I speak about living with a chronic illness, tricks and tips on how to survive a sudden curve in your life’s path and keeping a Positive Mental Attitude. Or just to see how me and my MG are doing!